Difference between revisions of "Geneva Health Forum Open Village"

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== Vision ==
The GHF Open Village is a series of participatory activities to value health as commons during the Geneva Health Forum.


=== Background ===
It is a joint event of the [[Geneva Health Forum]] and [[Open Geneva]], realized by [[Breathing Games]].  
6 in 10 humans still have no access to care, or do not adhere to it, despite rising investments. Alcohol-based hand rub and WikiMed illustrate how creating freely reproducible equipment and software with communities can: save millions of lives, increase integrity, cut costs by 90%. Cooperation-driven care is the only way to realize the 2030 agenda in time: health for everyone. We presente nine alternatives to the dominant proprietary excluding innovation model, to drive development towards a responsible, solidar society.


=== Aim ===
== Initial observation ==
We federate not-for-profit communities enhancing collective health, enabling individuals to better take care of their health, and build more resilient healthcare systems through co-created, freely reproducible technologies. We lead and support a set of cooperation-driven, multidisciplinary, science-backed projects that foster solidarity and peer to peer contribution. We strive to mutualize efforts and tools, and help shape a common-ground for like-minded projects to work together on common outcomes.
[[File:Breathing Games health paradigms.png|thumb|Health as a business / as commons. [https://doi.org/10.5281/zenodo.5515632 Source].]]
6 in 10 humans still have no access to care,<ref>WHO and World Bank. Half the world lacks access to essential health services… 2018. https://www.who.int/news/item/13-12-2017-world-bank-and-who-half-the-world-lacks-access-to-essential-health-services-100-million-still-pushed-into-extreme-poverty-because-of-health-expenses</ref> or do not adhere to it,<ref>WHO. Adherence to long-term therapies: evidence for action. 2003. https://www.who.int/home/cms-decommissioning</ref> despite rising investments.<ref>World Bank. Current health expenditure (% of GDP). 2020. https://donnees.banquemondiale.org/indicateur/SH.XPD.CHEX.GD.ZS</ref>
 
Alcohol-based hand rub<ref>WHO. Guide to Local Production: WHO-recommended Handrub Formulations. https://www.who.int/gpsc/5may/Guide_to_Local_Production.pdf</ref> and WikiMed<ref>WikiMedia. Wiki Project Med/App. 2020. https://meta.wikimedia.org/wiki/Wiki_Project_Med/App</ref> illustrate how creating freely reproducible equipment and software with communities can: save millions of lives, increase integrity, cut costs by 90%.<ref>Winter et al. Open Source Medical Devices for Innovation, Education and Global Health. 2018. https://www.researchgate.net/publication/329072770_Open_Source_Medical_Devices_for_Innovation_Education_and_Global_Health_Case_Study_of_Open_Source_Magnetic_Resonance_Imaging_Reshaping_Business_and_Society_in_the_Era_of_Bottom-up_Economics</ref>
 
Cooperation-driven care is the only way to realize the 2030 agenda in time: health for everyone.<ref>United Nations. #Envision2030 Goal 3: Good Health and Well-being. https://www.un.org/development/desa/disabilities/envision2030-goal3.html</ref>
 
We present alternatives to the dominant proprietary excluding innovation model, to drive development towards a responsible, solidar society.
 
== Purpose ==
 
=== Mission ===
We federate not-for-profit communities enhancing collective health, enabling individuals to better take care of their health, and build more resilient healthcare systems through co-created, freely reproducible technologies.  
 
We lead and support a set of cooperation-driven, multidisciplinary, science-backed projects that foster solidarity and peer to peer contribution.  
 
We strive to mutualize efforts and tools, and help shape a common-ground for like-minded projects to work together on common outcomes.


=== Values ===
=== Values ===
 
For us,
* quality of cooperation prevails over competition
* quality of cooperation prevails over competition
* mutual support prevails over technical expertise
* mutual support prevails over technical expertise
* freedom of adaptation rather than excluding propriety
* freedom of adaptation rather than excluding propriety
* with and by user communities rather than for them
* with and by user communities rather than for them
* creation-as-research rather than research after creation
* creation-as-research<ref>Champman OB, Sawchuk K. Research-Creation: Intervention, Analysis and "Family Resemblances". Canadian Journal of Communication 2012; 37(1). <nowiki>https://cjc-online.ca/index.php/journal/article/view/2489</nowiki></ref> rather than research after creation


=== Benefits ===
=== Benefits ===
 
For people taking part in the GHF Open Village, we envision following benefits:
* sharing practices including open design, manufacturing of medical devices vs reproducibility, multidisciplinary community building, etc.
* sharing practices including open design, manufacturing of medical devices vs reproducibility, multidisciplinary community building, etc.
* mutualizing resources such as expertise of people affected, access to caregivers, health data infrastructures etc.
* mutualizing resources such as expertise of people affected, access to caregivers, health data infrastructures etc.
* developing common projects such as raising funds to test devices in various settings, hosting events to raise awareness on open health, etc.
* developing common projects such as raising funds to test devices in various settings, hosting events to raise awareness on open health, etc.
* advocating for ‘public money, public-driven innovation’ policies in healthcare REF
* advocating for ‘public money, public-driven innovation’ policies in healthcare<ref>Free Software Foundation Europe. Public money, public code. 2021. <nowiki>https://publiccode.eu</nowiki></ref>


== Activities ==
== First edition ==
[[File:GHF Open Village poster 2020 EN.png|thumb|Synthesis of the GHF Open Village 2020]]
In 2020, we organized a series of twenty hands-on events, detailed with their outcomes:
* '''[[GHF Open Village 2020]]'''
A poster synthesis was released in the nine first languages by number of speakers:


* [[GHF Open Village 2020]]
* English – [[Health technology as commons: trustable, affordable, adaptable]].
* [[GHF Open Village 2022]]
* Chinese – [https://doi.org/10.5281/zenodo.4437541 公有制下的健康科技: 可信赖, 可负担, 可适应].
* Hindi – [https://doi.org/10.5281/zenodo.4437605 आमजन-स्वामित्व के रूप में स्वास्थ्य प्रौद्योगिकी: विश्वसनीय, अनुकूल एवं किफ़ायती].
* Spanish – [https://doi.org/10.5281/zenodo.4437585 La tecnología de la salud como común: confiable, asequible, adaptable].
* Arabic – [https://doi.org/10.5281/zenodo.4437609 تكنولوجيا الصحة ذات الملكية المشتركة : موثوقة، متاحة وقابلة للتكّيُف].
* Bengali – [https://doi.org/10.5281/zenodo.4437607 সর্ব সাধারনের জন্য সাস্থ্য প্রযুক্তিঃ বিশ্বাসযোগ্য,সাশ্রয়ী,অভিযোজনযোগ্য].
* French – [https://doi.org/10.5281/zenodo.4428132 Technologies de santé en communs : fiables, abordables, adaptables].
* Russian – [https://doi.org/10.5281/zenodo.4437603 Технологии здравоохранения для всех: надежные, доступные, адаптивные].
* Portuguese – [https://doi.org/10.5281/zenodo.4437601 A tecnologia de saúde como comuns: confiável, acessível, adaptável].


== Origins ==
== Second edition ==
The GHF Open Village was initiated by three people (Eric Comte, Thomas Maillard, Fabio Balli) and their respective organizations in October 2019, to value open innovation in medical care.
In 2022, we will invite interested communities to propose activities around health commons, see


Patrons
* '''[[GHF Open Village 2022]]'''


* [https://ghf2022.org '''Geneva Health Forum'''] is a biennal medical congress organized by the Hospitals of the University of Geneva (HUG). Since 2006, it "brings together key actors to help find solutions to global health challenges [...notably] improving health and care access in the world."<ref>https://site.ghf2022.org/the-forum-that-brings-together-key-actors-of-global-health/</ref> Usually held at [https://cicg.ch/ CICG], it welcomes around 1600 medical professionals, NGO administrators, patients, and other interested people.
== Core contributors ==
* [https://opengeneva.org/ '''Open Geneva'''] is an association that organizes a festival of hackathons to "promote open innovation in a spirit of sharing knowledge for the common good."<ref>https://drive.google.com/file/d/17nMuqlWzCVHcC-vzQvnlkCpmOutUg9nK/view</ref> Since 2017, it brings together about 1500 participants in 20-30 hackathons organized by actors from the civil society, with logisitical and communication support support from the association.
The GHF Open Village was initiatied in October 2019 (*), and its purpose refined early 2021 (^). New co-hosts joined for the second edition (<sup>s</sup>)


Organization
* Patrons
** Eric Comte<sup>*</sup> – executive director of [[Geneva Health Forum]]
** Thomas Maillard* – co-founder of [[Open Geneva]]
* Lead
** Fabio Balli*^ – co-founder of [[Breathing Games]]
* Co-hosts
** Mathilde Matringue^ – community manager of [[EchOpen]]
** Clément le Couédic^ – co-founder of [[Aura]]
** Emmanuel Kellner^ – co-founder of [[LogAir]]
** David-Zacharie Issom<sup>s</sup> – patient innovator
** David Risse<sup>s</sup> – founder, CREACC-Diversités
* Key supporters
** Katerina Serada – policy analyst
** Jon Schull – founder of [[E-nable]]


* '''[https://breathinggames.net Breathing Games]''' is a global commons that "invites people to collectively create libre and open-source games and game controllers to foster mutual and self- care in respiratory and mental health."<ref>https://breathinggames.net/about</ref> Since 2014, Breathing Games hosted over twenty game jams, including a yearly event in Geneva – 2016 and 2017 as part of the Lift Conference, 2018, 2019, 2020 as part of Open Geneva.
__________
__________

Revision as of 21:18, 5 December 2021

The GHF Open Village is a series of participatory activities to value health as commons during the Geneva Health Forum.

It is a joint event of the Geneva Health Forum and Open Geneva, realized by Breathing Games.

Initial observation

Health as a business / as commons. Source.

6 in 10 humans still have no access to care,[1] or do not adhere to it,[2] despite rising investments.[3]

Alcohol-based hand rub[4] and WikiMed[5] illustrate how creating freely reproducible equipment and software with communities can: save millions of lives, increase integrity, cut costs by 90%.[6]

Cooperation-driven care is the only way to realize the 2030 agenda in time: health for everyone.[7]

We present alternatives to the dominant proprietary excluding innovation model, to drive development towards a responsible, solidar society.

Purpose

Mission

We federate not-for-profit communities enhancing collective health, enabling individuals to better take care of their health, and build more resilient healthcare systems through co-created, freely reproducible technologies.

We lead and support a set of cooperation-driven, multidisciplinary, science-backed projects that foster solidarity and peer to peer contribution.

We strive to mutualize efforts and tools, and help shape a common-ground for like-minded projects to work together on common outcomes.

Values

For us,

  • quality of cooperation prevails over competition
  • mutual support prevails over technical expertise
  • freedom of adaptation rather than excluding propriety
  • with and by user communities rather than for them
  • creation-as-research[8] rather than research after creation

Benefits

For people taking part in the GHF Open Village, we envision following benefits:

  • sharing practices including open design, manufacturing of medical devices vs reproducibility, multidisciplinary community building, etc.
  • mutualizing resources such as expertise of people affected, access to caregivers, health data infrastructures etc.
  • developing common projects such as raising funds to test devices in various settings, hosting events to raise awareness on open health, etc.
  • advocating for ‘public money, public-driven innovation’ policies in healthcare[9]

First edition

Synthesis of the GHF Open Village 2020

In 2020, we organized a series of twenty hands-on events, detailed with their outcomes:

A poster synthesis was released in the nine first languages by number of speakers:

Second edition

In 2022, we will invite interested communities to propose activities around health commons, see

Core contributors

The GHF Open Village was initiatied in October 2019 (*), and its purpose refined early 2021 (^). New co-hosts joined for the second edition (s)

  • Patrons
  • Lead
  • Co-hosts
    • Mathilde Matringue^ – community manager of EchOpen
    • Clément le Couédic^ – co-founder of Aura
    • Emmanuel Kellner^ – co-founder of LogAir
    • David-Zacharie Issoms – patient innovator
    • David Risses – founder, CREACC-Diversités
  • Key supporters
    • Katerina Serada – policy analyst
    • Jon Schull – founder of E-nable

__________

  1. ↑ WHO and World Bank. Half the world lacks access to essential health services… 2018. https://www.who.int/news/item/13-12-2017-world-bank-and-who-half-the-world-lacks-access-to-essential-health-services-100-million-still-pushed-into-extreme-poverty-because-of-health-expenses
  2. ↑ WHO. Adherence to long-term therapies: evidence for action. 2003. https://www.who.int/home/cms-decommissioning
  3. ↑ World Bank. Current health expenditure (% of GDP). 2020. https://donnees.banquemondiale.org/indicateur/SH.XPD.CHEX.GD.ZS
  4. ↑ WHO. Guide to Local Production: WHO-recommended Handrub Formulations. https://www.who.int/gpsc/5may/Guide_to_Local_Production.pdf
  5. ↑ WikiMedia. Wiki Project Med/App. 2020. https://meta.wikimedia.org/wiki/Wiki_Project_Med/App
  6. ↑ Winter et al. Open Source Medical Devices for Innovation, Education and Global Health. 2018. https://www.researchgate.net/publication/329072770_Open_Source_Medical_Devices_for_Innovation_Education_and_Global_Health_Case_Study_of_Open_Source_Magnetic_Resonance_Imaging_Reshaping_Business_and_Society_in_the_Era_of_Bottom-up_Economics
  7. ↑ United Nations. #Envision2030 Goal 3: Good Health and Well-being. https://www.un.org/development/desa/disabilities/envision2030-goal3.html
  8. ↑ Champman OB, Sawchuk K. Research-Creation: Intervention, Analysis and "Family Resemblances". Canadian Journal of Communication 2012; 37(1). https://cjc-online.ca/index.php/journal/article/view/2489
  9. ↑ Free Software Foundation Europe. Public money, public code. 2021. https://publiccode.eu
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