Difference between revisions of "Health and law-making: collectively re-creating narratives"

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When a crisis happens – a disease, a change in our environment – we similarly rely on external authorities, who are usually prompt to provide us with directives.
When a crisis happens – a disease, a change in our environment – we similarly rely on external authorities, who are usually prompt to provide us with directives.


But is this really the most effective way to take care of our very needs, to overcome complex challenges?<ref>Oxfam. '''The hunger virus multiplies: deadly recipe of conflict, covid19 and climate accelerate world hunger'''. 2021. https://oi-files-d8-prod.s3.eu-west-2.amazonaws.com/s3fs-public/2021-07/The%20Hunger%20Virus%202.0_media%20brief_EN.pdf</ref><ref>V-Dem Institute. '''Autocratization Turns Viral. Democracy Report 2021'''. 2021. https://www.v-dem.net/files/25/DR+2021.pdf</ref><ref>Rushkoff D. '''Team Human'''. WW Norton 2019. https://rushkoff.com/books/team-human-book/</ref> Can a few really be more knowledgeable than the multitude?<ref>Okolloh O. '''Ushahidi or ’testimony’: Web 2.0 tools for crowdsourcing crisis information'''. Participatory Learning and Action 2009. https://pubs.iied.org/g02842</ref><ref>Raymond E. '''The cathedral and the bazaar'''. Knowledge, Technology & Policy 1999. https://doi.org/10.1007/s12130-999-1026-0</ref><ref>Falkvinge R. '''Swarmwise. The tactical manual to changing the world'''. CreateSpace 2013. https://falkvinge.net/files/2013/04/Swarmwise-2013-by-Rick-Falkvinge-v1.1-2013Sep01.pdf</ref>
But is this really the most effective way to take care of our very needs, to overcome complex challenges?<ref>Oxfam. '''The hunger virus multiplies: deadly recipe of conflict, covid19 and climate accelerate world hunger'''. 2021. https://oi-files-d8-prod.s3.eu-west-2.amazonaws.com/s3fs-public/2021-07/The%20Hunger%20Virus%202.0_media%20brief_EN.pdf</ref><ref>V-Dem Institute. '''Autocratization Turns Viral. Democracy Report 2021'''. 2021. https://www.v-dem.net/files/25/DR+2021.pdf</ref><ref>Rushkoff D. '''Team Human'''. WW Norton 2019. https://rushkoff.com/books/team-human-book/</ref><ref>Medina J. '''The Epistemology of Resistance – Gender and Racial Oppression, Epistemic Injustice, and the Social Imagination'''. Oxford 2013. https://doi.org/10.1093/acprof:oso/9780199929023.001.0001</ref> Can a few really be more knowledgeable than the multitude?<ref>Raymond E. '''The cathedral and the bazaar'''. Knowledge, Technology & Policy 1999. https://doi.org/10.1007/s12130-999-1026-0</ref><ref>Capra F, Mattei U. '''The Ecology of Law: Toward a legal system in tune with Nature and Community'''. Berrett-Koehler 2015. https://www.bkconnection.com/books/title/the-ecology-of-law</ref><ref>Okolloh O. '''Ushahidi or ’testimony’: Web 2.0 tools for crowdsourcing crisis information'''. Participatory Learning and Action 2009. https://pubs.iied.org/g02842</ref><ref>Falkvinge R. '''Swarmwise. The tactical manual to changing the world'''. CreateSpace 2013. https://falkvinge.net/files/2013/04/Swarmwise-2013-by-Rick-Falkvinge-v1.1-2013Sep01.pdf</ref>


Is the centralization of power during an emergency still legitimate when Internet enable thousands of people to put in commons their resources (online hackathons),<ref>Balli F. '''Team-building and information flow for large groups such as online hackathons - Updated Feb 2021'''. Zenodo 2021. https://doi.org/10.5281/zenodo.3743244</ref> and to reach decisions within hours (digital democracy)?<ref>Mancini P. '''Why it is time to redesign our political system'''. European View 2015. https://doi.org/10.1007/s12290-015-0343-9</ref><ref>European Parliament. '''Digital democracy Is the future of civic engagement online?''' 2020. https://www.europarl.europa.eu/RegData/etudes/BRIE/2020/646161/EPRS_BRI(2020)646161_EN.pdf</ref><ref>Balli F. '''Global crises, democratic solutions—within days. Using Internet to empower citizens, reach popular consensus, and ensure democratic decision-making [Preprint]'''. Zenodo 2021. https://doi.org/10.5281/zenodo.5497574</ref>
Is the centralization of power during an emergency still legitimate when Internet enable thousands of people to put in commons their resources (online hackathons),<ref>Balli F. '''Team-building and information flow for large groups such as online hackathons - Updated Feb 2021'''. Zenodo 2021. https://doi.org/10.5281/zenodo.3743244</ref> and to reach decisions within hours (digital democracy)?<ref>Mancini P. '''Why it is time to redesign our political system'''. European View 2015. https://doi.org/10.1007/s12290-015-0343-9</ref><ref>European Parliament. '''Digital democracy Is the future of civic engagement online?''' 2020. https://www.europarl.europa.eu/RegData/etudes/BRIE/2020/646161/EPRS_BRI(2020)646161_EN.pdf</ref><ref>Balli F. '''Global crises, democratic solutions—within days. Using Internet to empower citizens, reach popular consensus, and ensure democratic decision-making [Preprint]'''. Zenodo 2021. https://doi.org/10.5281/zenodo.5497574</ref>


During this participatory workshop, we will explore the narratives behind 'health' and 'law' policy-making centralization. We will explore how people can reclaim ownership of themselves, control over their medical journey and medical information (e.g. health commons,<ref>Balli F, Matringe M, le Couedic C, Schull J, Gautam S, Jandard P, Kellner E, Anastasaki A, Serada K, Brahmachari SK, Winter L, Lonchampt P, Schoeller F, Krishnakumar A, Greshake B, Lhoste K, Parot C, Jeanmaire G. '''Health technology as commons: trustable, affordable, adaptable'''. Geneva Health Forum Open Village. Zenodo 2021. https://doi.org/10.5281/zenodo.4327587</ref><ref>Balli F, Ibbotson R, Chhabra V, Pimentel JP, Suturin V, Falcon L, Timm-Bottos J, Kellner E, Menon J, Matringe M, le Couedic C. '''Open-source respiratory health commons. 15 projects communities can adapt, repair, reproduce for low cost medical care (libre and open-source tech)'''. General meeting of the Global Alliance against chronic Respiratory Diseases 2020-2021. Zenodo 2021. https://doi.org/10.5281/zenodo.5515632</ref> critical public health<ref>Greenhalgh T. '''Patient and public involvement in chronic illness: beyond the expert patient'''. BMJ 2009. https://doi.org/10.1136/bmj.b49</ref>). We will also discuss how individuals and communities can reclaim the right to elaborate rules that affect them (legal commons, democratic constitutionalism<ref>Post R, Siegel R. '''Roe Rage: Democratic Constitutionalism and Backlash'''. Harvard Civil Rights-Civil Liberties Law Review 2007. https://law.yale.edu/sites/default/files/documents/pdf/Faculty/Siegel_RoeRageDemocraticConstitutionalismAndBacklash.pdf</ref><ref>Vergara C. '''Systemic corruption: constitutional ideas for an anti-oligarchic republic'''. Princeton University Press 2020. https://press.princeton.edu/books/hardcover/9780691207537/systemic-corruption</ref>).
During this participatory workshop, we will explore the narratives behind 'health' and 'law' policy-making centralization. We will explore how people can reclaim ownership of themselves, control over their medical journey and medical information (e.g. health commons,<ref>Balli F, Matringe M, le Couedic C, Schull J, Gautam S, Jandard P, Kellner E, Anastasaki A, Serada K, Brahmachari SK, Winter L, Lonchampt P, Schoeller F, Krishnakumar A, Greshake B, Lhoste K, Parot C, Jeanmaire G. '''Health technology as commons: trustable, affordable, adaptable'''. Geneva Health Forum Open Village. Zenodo 2021. https://doi.org/10.5281/zenodo.4327587</ref><ref>Balli F, Ibbotson R, Chhabra V, Pimentel JP, Suturin V, Falcon L, Timm-Bottos J, Kellner E, Menon J, Matringe M, le Couedic C. '''Open-source respiratory health commons. 15 projects communities can adapt, repair, reproduce for low cost medical care (libre and open-source tech)'''. General meeting of the Global Alliance against chronic Respiratory Diseases 2020-2021. Zenodo 2021. https://doi.org/10.5281/zenodo.5515632</ref> critical public health<ref>Greenhalgh T. '''Patient and public involvement in chronic illness: beyond the expert patient'''. BMJ 2009. https://doi.org/10.1136/bmj.b49</ref>). We will also discuss how individuals and communities can reclaim the right to elaborate rules that affect them (legal commons, democratic constitutionalism<ref>Post R, Siegel R. '''Roe Rage: Democratic Constitutionalism and Backlash'''. Harvard Civil Rights-Civil Liberties Law Review 2007. https://law.yale.edu/sites/default/files/documents/pdf/Faculty/Siegel_RoeRageDemocraticConstitutionalismAndBacklash.pdf</ref><ref>Vergara C. '''Systemic corruption: constitutional ideas for an anti-oligarchic republic'''. Princeton University Press 2020. https://press.princeton.edu/books/hardcover/9780691207537/systemic-corruption</ref><ref>Boal A. '''Legislative Theatre. Using performance to make politics'''. Routledge 1999. https://www.routledge.com/Legislative-Theatre-Using-Performance-to-Make-Politics/Boal/p/book/9780415182416</ref>).


Finally, we will reflect on Elinor Ostrom's say that "a core goal of public policy should  be to facilitate the development of institutions that bring out the best in humans,"<ref>Ostrom E. '''Beyond markets and states: polycentric governance of complex economic systems'''. Prize lecture. The Sveriges Riksbank Prize in Economic Sciences in Memory of Alfred Nobel 2009. https://www.nobelprize.org/uploads/2018/06/ostrom_lecture.pdf</ref> and will introduce the work done by legal scholars working on indigenous law (Canada),<ref>Banville MS, Lapalme J. '''Property Rights / Property Wrongs: Micro-Treaties with the Earth. Rethinking our responsibilities towards nature through land stewardship'''. Dark Matters Laboratories 2020. https://provocations.darkmatterlabs.org/property-rights-property-wrongs-micro-treaties-with-the-earth-9b1ca44b4df</ref> and on changing the law regarding propriety (Italy).<ref>Italian Ministry of Justice. '''Commissione Rodotà - per la modifica delle norme del codice civile in materia di beni pubblici'''. 2007. https://www.giustizia.it/giustizia/it/mg_1_12_1.wp?contentId=SPS47617</ref><ref>Vercellone A. '''The italian experience of the commons: rithg to the city, private property, fundamental rights'''. The Cardozo Electronic Law Bulletin 2020. https://iris.unito.it/retrieve/handle/2318/1742871/620624/cardozo%20commons.pdf</ref><ref>Italian Court of Cassassion. '''Blue Valley Srl vs Ministero delle Infrastrutture e dei Trasporti, Ministero dell'Economia e delle Finanze'''. 2011. https://www.labsus.org/wp-content/uploads//images/M_images/sentenza3811.doc</ref>
Finally, we will reflect on Elinor Ostrom's say that "a core goal of public policy should  be to facilitate the development of institutions that bring out the best in humans,"<ref>Ostrom E. '''Beyond markets and states: polycentric governance of complex economic systems'''. Prize lecture. The Sveriges Riksbank Prize in Economic Sciences in Memory of Alfred Nobel 2009. https://www.nobelprize.org/uploads/2018/06/ostrom_lecture.pdf</ref> and will introduce the work done by legal scholars working on indigenous law (Canada, Switzerland),<ref>Banville MS, Lapalme J. '''Property Rights / Property Wrongs: Micro-Treaties with the Earth. Rethinking our responsibilities towards nature through land stewardship'''. Dark Matters Laboratories 2020. https://provocations.darkmatterlabs.org/property-rights-property-wrongs-micro-treaties-with-the-earth-9b1ca44b4df</ref><ref>Knoepfel P, Schweizer R. '''Le local et le global : quatre défis de la codification du droit foncier dans le cadre du processus de rédaction du code civil suisse de 1907'''. In Ponsonnet M, Travési C. Les conceptions de la propriété foncière à l'épreuve des revendications autochtones : possession, propriété et leurs avatars. Pacific-Credo 2015. https://doi.org/10.4000/books.pacific.330</ref> and on changing the law regarding propriety (Italy).<ref>Italian Ministry of Justice. '''Commissione Rodotà - per la modifica delle norme del codice civile in materia di beni pubblici'''. 2007. https://www.giustizia.it/giustizia/it/mg_1_12_1.wp?contentId=SPS47617</ref><ref>Vercellone A. '''The italian experience of the commons: rithg to the city, private property, fundamental rights'''. The Cardozo Electronic Law Bulletin 2020. https://iris.unito.it/retrieve/handle/2318/1742871/620624/cardozo%20commons.pdf</ref><ref>Italian Court of Cassassion. '''Blue Valley Srl vs Ministero delle Infrastrutture e dei Trasporti, Ministero dell'Economia e delle Finanze'''. 2011. https://www.labsus.org/wp-content/uploads//images/M_images/sentenza3811.doc</ref>


=== Facilitators ===
=== Facilitators ===
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* Emergence of participants' knowledge on the topic enriched by inputs from experts.
* Emergence of participants' knowledge on the topic enriched by inputs from experts.
=== Further readings ===
* Boal A. [https://www.routledge.com/Legislative-Theatre-Using-Performance-to-Make-Politics/Boal/p/book/9780415182416 Legislative Theatre. Using Performance to Make Politics]. Routledge 1999.
*Capra F, Mattei U. [https://www.bkconnection.com/books/title/the-ecology-of-law The Ecology of Law: Toward a legal system in tune with Nature and Community]. Berrett-Koehler 2015.
*Knoepfel P, Schweizer R. [https://doi.org/10.4000/books.pacific.330 Le local et le global : quatre défis de la codification du droit foncier dans le cadre du processus de rédaction du code civil suisse de 1907]. In Ponsonnet M, Travési C. Les conceptions de la propriété foncière à l'épreuve des revendications autochtones : possession, propriété et leurs avatars. Pacific-Credo 2015.
*Laugeri M. [https://www.changementemergent.ch/fr/cles-dialogue Les clés du dialogue hiérarchique]. InterEditions 2015.
*Medina J. [https://doi.org/10.1093/acprof:oso/9780199929023.001.0001 The Epistemology of Resistance – Gender and Racial Oppression, Epistemic Injustice, and the Social Imagination]. Oxford 2013.
* Pearce JM. [https://doi.org/10.1038/505618d Cut costs with open-source hardware]. Nature 2014.


== People ==
== People ==

Revision as of 13:34, 22 February 2022

On March 10 2022, from 13:30 to 15:00 CET, an online workshop will be organized by the International Association for the Study of the Commons.

This event is part of a colloquia series "dedicated to the policy issues related to the commons and importance of bringing the commons discussion to policy makers' attention in Europe & CIS and for engaging our community in a wider policy dialogue."

Blurb

Since childhood, we learn that knowledge does not come from ourselves (schoolchildren), but from a 'master'.

When a crisis happens – a disease, a change in our environment – we similarly rely on external authorities, who are usually prompt to provide us with directives.

But is this really the most effective way to take care of our very needs, to overcome complex challenges?[1][2][3][4] Can a few really be more knowledgeable than the multitude?[5][6][7][8]

Is the centralization of power during an emergency still legitimate when Internet enable thousands of people to put in commons their resources (online hackathons),[9] and to reach decisions within hours (digital democracy)?[10][11][12]

During this participatory workshop, we will explore the narratives behind 'health' and 'law' policy-making centralization. We will explore how people can reclaim ownership of themselves, control over their medical journey and medical information (e.g. health commons,[13][14] critical public health[15]). We will also discuss how individuals and communities can reclaim the right to elaborate rules that affect them (legal commons, democratic constitutionalism[16][17][18]).

Finally, we will reflect on Elinor Ostrom's say that "a core goal of public policy should  be to facilitate the development of institutions that bring out the best in humans,"[19] and will introduce the work done by legal scholars working on indigenous law (Canada, Switzerland),[20][21] and on changing the law regarding propriety (Italy).[22][23][24]

Facilitators

Proposal

Content (draft)

  • Worldviews about the Law
    • a book of rules to comply to → Napoleon civil code (post-positivism, universalism)
    • a process of collectively agreeing on the rules that bring out the best of society → indigenous customs (social constructivism, contextual)
  • Origins in Education
    • Knowledge owned by third-party experts → hierarchy, state vs market
    • Knowledge emerging from the group → self-organization, commons
  • Narratives about the Social Contract
    • Innovation requires private resources → intellectual property, exclusion
    • Access to resources is a fundamental right → participatory governance, pluralism (Rodotà, Italy Supreme Court)

Approach

  • Emergence of participants' knowledge on the topic enriched by inputs from experts.

People

Participants

  • ...

Series hosts

  1. ↑ Oxfam. The hunger virus multiplies: deadly recipe of conflict, covid19 and climate accelerate world hunger. 2021. https://oi-files-d8-prod.s3.eu-west-2.amazonaws.com/s3fs-public/2021-07/The%20Hunger%20Virus%202.0_media%20brief_EN.pdf
  2. ↑ V-Dem Institute. Autocratization Turns Viral. Democracy Report 2021. 2021. https://www.v-dem.net/files/25/DR+2021.pdf
  3. ↑ Rushkoff D. Team Human. WW Norton 2019. https://rushkoff.com/books/team-human-book/
  4. ↑ Medina J. The Epistemology of Resistance – Gender and Racial Oppression, Epistemic Injustice, and the Social Imagination. Oxford 2013. https://doi.org/10.1093/acprof:oso/9780199929023.001.0001
  5. ↑ Raymond E. The cathedral and the bazaar. Knowledge, Technology & Policy 1999. https://doi.org/10.1007/s12130-999-1026-0
  6. ↑ Capra F, Mattei U. The Ecology of Law: Toward a legal system in tune with Nature and Community. Berrett-Koehler 2015. https://www.bkconnection.com/books/title/the-ecology-of-law
  7. ↑ Okolloh O. Ushahidi or ’testimony’: Web 2.0 tools for crowdsourcing crisis information. Participatory Learning and Action 2009. https://pubs.iied.org/g02842
  8. ↑ Falkvinge R. Swarmwise. The tactical manual to changing the world. CreateSpace 2013. https://falkvinge.net/files/2013/04/Swarmwise-2013-by-Rick-Falkvinge-v1.1-2013Sep01.pdf
  9. ↑ Balli F. Team-building and information flow for large groups such as online hackathons - Updated Feb 2021. Zenodo 2021. https://doi.org/10.5281/zenodo.3743244
  10. ↑ Mancini P. Why it is time to redesign our political system. European View 2015. https://doi.org/10.1007/s12290-015-0343-9
  11. ↑ European Parliament. Digital democracy Is the future of civic engagement online? 2020. https://www.europarl.europa.eu/RegData/etudes/BRIE/2020/646161/EPRS_BRI(2020)646161_EN.pdf
  12. ↑ Balli F. Global crises, democratic solutions—within days. Using Internet to empower citizens, reach popular consensus, and ensure democratic decision-making [Preprint]. Zenodo 2021. https://doi.org/10.5281/zenodo.5497574
  13. ↑ Balli F, Matringe M, le Couedic C, Schull J, Gautam S, Jandard P, Kellner E, Anastasaki A, Serada K, Brahmachari SK, Winter L, Lonchampt P, Schoeller F, Krishnakumar A, Greshake B, Lhoste K, Parot C, Jeanmaire G. Health technology as commons: trustable, affordable, adaptable. Geneva Health Forum Open Village. Zenodo 2021. https://doi.org/10.5281/zenodo.4327587
  14. ↑ Balli F, Ibbotson R, Chhabra V, Pimentel JP, Suturin V, Falcon L, Timm-Bottos J, Kellner E, Menon J, Matringe M, le Couedic C. Open-source respiratory health commons. 15 projects communities can adapt, repair, reproduce for low cost medical care (libre and open-source tech). General meeting of the Global Alliance against chronic Respiratory Diseases 2020-2021. Zenodo 2021. https://doi.org/10.5281/zenodo.5515632
  15. ↑ Greenhalgh T. Patient and public involvement in chronic illness: beyond the expert patient. BMJ 2009. https://doi.org/10.1136/bmj.b49
  16. ↑ Post R, Siegel R. Roe Rage: Democratic Constitutionalism and Backlash. Harvard Civil Rights-Civil Liberties Law Review 2007. https://law.yale.edu/sites/default/files/documents/pdf/Faculty/Siegel_RoeRageDemocraticConstitutionalismAndBacklash.pdf
  17. ↑ Vergara C. Systemic corruption: constitutional ideas for an anti-oligarchic republic. Princeton University Press 2020. https://press.princeton.edu/books/hardcover/9780691207537/systemic-corruption
  18. ↑ Boal A. Legislative Theatre. Using performance to make politics. Routledge 1999. https://www.routledge.com/Legislative-Theatre-Using-Performance-to-Make-Politics/Boal/p/book/9780415182416
  19. ↑ Ostrom E. Beyond markets and states: polycentric governance of complex economic systems. Prize lecture. The Sveriges Riksbank Prize in Economic Sciences in Memory of Alfred Nobel 2009. https://www.nobelprize.org/uploads/2018/06/ostrom_lecture.pdf
  20. ↑ Banville MS, Lapalme J. Property Rights / Property Wrongs: Micro-Treaties with the Earth. Rethinking our responsibilities towards nature through land stewardship. Dark Matters Laboratories 2020. https://provocations.darkmatterlabs.org/property-rights-property-wrongs-micro-treaties-with-the-earth-9b1ca44b4df
  21. ↑ Knoepfel P, Schweizer R. Le local et le global : quatre défis de la codification du droit foncier dans le cadre du processus de rédaction du code civil suisse de 1907. In Ponsonnet M, Travési C. Les conceptions de la propriété foncière à l'épreuve des revendications autochtones : possession, propriété et leurs avatars. Pacific-Credo 2015. https://doi.org/10.4000/books.pacific.330
  22. ↑ Italian Ministry of Justice. Commissione Rodotà - per la modifica delle norme del codice civile in materia di beni pubblici. 2007. https://www.giustizia.it/giustizia/it/mg_1_12_1.wp?contentId=SPS47617
  23. ↑ Vercellone A. The italian experience of the commons: rithg to the city, private property, fundamental rights. The Cardozo Electronic Law Bulletin 2020. https://iris.unito.it/retrieve/handle/2318/1742871/620624/cardozo%20commons.pdf
  24. ↑ Italian Court of Cassassion. Blue Valley Srl vs Ministero delle Infrastrutture e dei Trasporti, Ministero dell'Economia e delle Finanze. 2011. https://www.labsus.org/wp-content/uploads//images/M_images/sentenza3811.doc
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